Genetic Alliance UK ^NGOs

Genetic Alliance UK is a national charity with over 200 patient group members. We support all those affected by genetic, rare and undiagnosed conditions. We upskill patient organisations and conduct our own research while also supporting research and innovation in this field. We are experts in health policy and, in collaboration with our members, have driven home positive changes for patients and families. As a charity, we also run the campaign Rare Disease UK and the national support network SWAN UK (syndromes without a name). Our aim is to ensure that high-quality services, information and support are provided to all who need them.