Debra UK ^NGOs

Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch. Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.There is currently no known cure for EB. At DEBRA, our work is focused on funding research to change this, while also supporting people living with EB to enhance their quality of life through improved healthcare, access to information and respite care.